RESOURCES

For additional information about the Bleeding Disorders Community:

National Hemophilia Foundation
116 West 32nd Street, 11th Floor
New York, NY 10001
Phone: (212) 328-3700
Fax: (212) 328-3777
www.hemophilia.org
HANDI: NHF’s Information Resource Center
HANDI Phone: (800) 42-HANDI
HANDI Fax: (212) 328-3799
HANDI Email: handi@hemophilia.org
Webmaster: webmaster@hemophilia.org

Hemophilia Federation of America
820 First Street NE, Suite 720
Washington, DC 20002
800.230.9797
http://www.hemophiliafed.org
info@hemophiliafed.org

National Blood Clot Alliance
120 White Plains Road
Suite 100
Tarrytown, NY 10591
914.220.5040
www.info@stoptheclot.org

The Coalition for Hemophilia B, Inc.
825 3rd Avenue, Suite 226
New York, NY 10022
212.520.8272
http://www.coalitionforhemophiliab.org
hemob@ix.netcom.com

The Committee of Ten Thousand
236 Massachusetts Avenue NE # 609
Washington, DC 20002-4971
800.488.2688
phone 202.543.0988
fax 202.543.6720
www.cott1.org
cott-dc@earthlink.net

World Federation of Hemophilia USA
PMB 142, 911 Central Avenue
Albany, NY 12206-1304
602-512-9047
http://www.wfhusa.org
mike@wfhusa.org

Patient Advocate Information
Advocates Serving & Protecting Foundation: 704-408-0409   www.advocating4u.org
Affordable Healthcare Act:  www.healthcare.gov
Americans with Disabilities Act:  www.ada.gov
Bleeding Disorders Legal Hotline:  800-520-6154
Building A Legacy of Healthy Children:  www.kidswellcampaign.org
Children with Special Needs:  About.com
Kaiser Family Foundation:  www.kff.org   (non-profit focused on healthcare issues and policy)
National Hemophilia Foundation: 212-328-3700   www.hemophilia.org
PSI-Patient Services, Inc.: 800-366-7741   www.patientservicesinc.org
Patient Advocate Foundation-Solving Healthcare Access Problems:  www.patientadvocate.org/resources
U.S. Department of health & Human Services-The Center for Consumer Information & Insurance Oversight:  www.cciio.cms.gov
U.S. House of Representatives:  www.house.gov
U.S. Senate:  www.senate.gov

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