For additional information about the Bleeding Disorders Community:

National Hemophilia Foundation
116 West 32nd Street, 11th Floor
New York, NY 10001
Phone: (212) 328-3700
Fax: (212) 328-3777
HANDI: NHF’s Information Resource Center
HANDI Phone: (800) 42-HANDI
HANDI Fax: (212) 328-3799
HANDI Email:

Hemophilia Federation of America
820 First Street NE, Suite 720
Washington, DC 20002

National Blood Clot Alliance
120 White Plains Road
Suite 100
Tarrytown, NY 10591

The Coalition for Hemophilia B, Inc.
825 3rd Avenue, Suite 226
New York, NY 10022

The Committee of Ten Thousand
236 Massachusetts Avenue NE # 609
Washington, DC 20002-4971
phone 202.543.0988
fax 202.543.6720

World Federation of Hemophilia USA
PMB 142, 911 Central Avenue
Albany, NY 12206-1304

Patient Advocate Information
Advocates Serving & Protecting Foundation: 704-408-0409
Affordable Healthcare Act:
Americans with Disabilities Act:
Bleeding Disorders Legal Hotline:  800-520-6154
Building A Legacy of Healthy Children:
Children with Special Needs:
Kaiser Family Foundation:   (non-profit focused on healthcare issues and policy)
National Hemophilia Foundation: 212-328-3700
PSI-Patient Services, Inc.: 800-366-7741
Patient Advocate Foundation-Solving Healthcare Access Problems:
U.S. Department of health & Human Services-The Center for Consumer Information & Insurance Oversight:
U.S. House of Representatives:
U.S. Senate:

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