On this World Hemophilia Day, we want to take a moment to again introduce you to our dear friend, Peter. He along with so many other hemophilia patients, that we have the honor of serving beyond the prescription, are heroes to us.
What Is World Hemophilia Day?
World Hemophilia Day is an international awareness day for hemophilia and other bleeding disorders. It is held annually on April 17, date of the birthday of Frank Schnabel, founder of the World Federation of Hemophilia.
Since 1989, World Hemophilia Day is the day the whole bleeding disorders community comes together to celebrate the continuous advances in treatment while raising awareness and bringing understanding and attention to the issues related to proper care to the wider public.
Learn more, visit worldhemophiliaday.org
What Is Hemophilia?
Our friends at Hope for Hemophilia define hemophilia as, “A medical condition in which the ability of the blood to clot is severely reduced, causing the sufferer to bleed severely from even a slight injury. The condition is typically caused by a hereditary lack of a coagulation factor.”
Who Is Hope For Hemophilia?
HOPE was founded by friends who surrounded one family in crisis caused by hemophilia. It is our goal to pay that friendship forward. We are working tirelessly to bring hope to a community of incredible people who face some of the most painful, scary and lonely seasons throughout their lifetime. We believe together we can help these families win.
Hope for Hemophilia is a nationwide organization and works with patients directly to help them find resources when they need it most.
Peter Likes Avengers Bandaids
In a recent post, we introduced you to Peter, who likes Avengers bandaids. Peter is one of a kind and so dear to us along with numerous others that we at ASAP get to go beyond the prescription for every single day. But, why Avengers bandaids?
Peter always brings his own band aids to the doctor for visits when he knows they’ll be drawing blood. When he arrives, the staff always tells him they have bandaids he can use. Undeterred, Peter’s response is always the same, “But you don’t have Avengers bandaids.”
Peter, who has hemophilia, has become a dear friend over the years. In what was originally an off the cuff remark he once made, it led to making sure that every delivery with his name on it must always include superhero bandaids.
“Bandaids are so plain. The tan color doesn’t match your skin. So, why be tan?” After that, if we can pack an Avengers, Spiderman, or even a Teenage Mutant Ninja Turtles band-aid along with his factor, we absolutely did.
ASAP Goes Beyond the Prescription
Going beyond the prescription and becoming a trusted part of your health care team is just the beginning. What was true in 2001 is just as true in 2019. ASAP continuously aims to be an example of what health care can really mean.